You’ve probably landed here because your doctor has suggested the Nissen/G-tube surgery for your little one.
We were in your shoes just a short month ago.
It was during our second hospital stay for aspiration pneumonia that my doctor had suggested it.
Our son was on the highest dose of Nexium he could have and was still miserable. Couldn’t tolerate more than 20 oz of milk a day, hadn’t gained weight in two months, and of course, there was the pnemonia which we were warned would soon start causing irreparable lung damage.
It took me days to make the final decision.
For every great story I read on Dr. Google, there were 2 or 3 horror stories that followed.
Parents regretting ever doing it.
However, when I looked at my son, looking entirely miserable in his hospital bed and in the mirror at my exhausted self-going on our 7th night with no improvements, I realized we had exhausted all options, it truly was our last shot.
We told to doctor we were ready to do the surgery and he was scheduled for that Monday afternoon. The plan was to do it laparoscopically. 5 holes in various parts of his belly plus the G-tube.
I’m not going to lie, surgery was hard on both of us. I was an anxious mess and he didn’t tolerate anesthesia well. When he wouldn’t wake after surgery I cried on the couch to my husband that I had broke him.
The nurses assured me this was normal for preemies, and after a night on high flow oxygen, they proved to be right. About 24 hours later we were able to wean him off oxygen and he started to become more alert.
By the time we left the hospital 3 days later he was an entirely new baby.
I have zero regrets.
Sure he gagged and wretched a few times as the horror stories on google had promised. But what they didn’t tell us was that as long as we didn’t overwhelm his stomach, that wouldn’t happen.
Very slowly we increased the amount of feeds and he happily tolerated it.
I’m proud to say he now takes 30 ounces a day with ease.
We read that he would likely need the g-tube for what sounded like forever and we would one day be blending sandwiches for him, but I’m happy to announce, even though he still failed thickened milk on a follow-up swallow study, we’ve been able to successfully introduce baby purees.
He LOVES them.
This is the kid that gags from his hands in his mouth. We just introduced them slowly and didn’t push the issue and now he cries because we don’t shovel them in fast enough.
His doctor was excited at his latest check-up to tell me that his lungs were finally clear!
He no longer struggles to breathe.
The Nissen/G-tube is a huge decision. One that will ultimately affect your child for the rest of his or her life.
However, it can be the best decision ever made.
I watched my child struggle for months with illnesses and waste all of his energy breathing.
I now have a baby that laughs and plays and is finally catching up developmentally, and best of all sports round chubby cheeks.
Please reach out to me if you have any questions. I have photos of right after surgery I can share and photos of what he looks like now, weeks after surgery.
I’d love to hear any positive stories you’ve had with the Nissen/G-tube and how it’s changed you and your childs life for the better.